This special topical episode is focused and dedicated to patients around the world who are suffering with a rare disorder or rare disease.
In this episode, Anne opens the show defining rare disease. A rare disease is a condition that affects fewer than 200,000 people, whereas Europe defines it as something that affects less than 1 in 2,000 people. Drug companies have not been interested in developing treatments for rare diseases; there just wasn’t the incentive. The drug companies would not be able to sustain the costs involved in developing medicine.